Over the past couple of weeks, there have been announcements of some new documentary releases that could prove really important for my research, as well as raising awareness of chronic conditions.
Lady Gaga: Five Foot Two
Whilst promoting her upcoming documentary for Netflix, Lady Gaga has stated that it will reveal a behind the scenes look into her life, including intimate moments of how she suffers with chronic pain as a result of fibromyalgia. This isn’t entirely shocking news as during November last year, she posted online images of herself and discussing her chronic pain, even including ways she reduces her symptoms.
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Having a frustrating day with chronic pain, but I find myself feeling so blessed to have such strong intelligent female doctors. I think about Joanne too and her strength and the day gets a little easier. Plus I got @wanaynay by my side. "Hey Girl, we can make it easy if we lift each other." 🌸
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I was so overwhelmed by the empathy, confessions & personal stories of chronic pain in response to my previous post I thought what the hell. Maybe I should just share some of my personal remedies I've acquired over the past five years. Everyone's body and condition is different U should consult w ure Dr. but what the heck here we go! When my body goes into a spasm one thing I find really helps is infrared sauna. I've invested in one. They come in a large box form as well as a low coffin-like form and even some like electric blankets! You can also look around your community for a infrared sauna parlor or homeopathic center that has one. I combine this treatment with marley silver emergency blankets (seen in the photo) that trap in the heat and are very cheap, reusable and effective for detox as well as weight loss! In order to not overheat my system and cause more inflammation i follow this with either a VERY cold bath, ice bath (if u can stand it, it's worth it) or the most environmentally savvy way is to keep many reusable cold packs in the freezer ( or frozen peas' n carrots'!) and pack them around the body in all areas of pain. Hope this helps some of you, it helps me to keep doing my passion, job and the things I love even on days when I feel like I can't get out of bed. Love you and thank you for all your positive messages.
Although it is horrible to hear that such an icon has a chronic illness at a relatively young age, I can’t help but feel kind of excited as to what this means for our community of fellow chronic illness sufferers. Lady Gaga’s status and openness has launched this condition into the general media and people are starting to take notice. Nicole Douglas from OK! magazine described fibromyalgia as “horror chronic illness”, which (without trying to sound melodramatic) I believe it is. It is such a disabling condition, essentially invisible, with no cure. Is this the reaction we want though?
I’m really looking forward to the release of the documentary online and will be watching it next week when it’s available on Netflix. I’m intrigued as to what the reaction will be towards it and how this could affect the public’s perspective on fibromyalgia.
I was watching Jennifer Brea’s TED talk “What happens when you have a disease doctor’s can’t diagnose” and was blown away by her honesty and openness. I really identified with what she was saying and as it’s the highest rated TED talk of 2016, I guess others related to.
Upon further investigation, I saw that she has made a documentary called “Unrest”, investigating her invisible illness as well as communicating with others with the condition. With her background in statistics and social science, she also gives an insight into how invisible illnesses are affecting the population of the US.
I am really eager to see this film once it reaches the UK. I haven’t quite figured out how I’m going to see it yet as most of the screenings are in London and I struggle to travel, but am hoping I can work around that. Something I definitely want to see as soon as possible. It will be really interesting to see what people’s reactions are to the film as well. This isn’t as public facing as the Lady Gaga documentary will be, and the people that go to the cinema screenings of Unrest, I would imagine, either are affected by an invisible illness or film enthusiasts.
Can Graphic Design Save your Life?
“Can Graphic Design Save Your Life?” is a current and free exhibition running at Wellcome Collection at the moment until 14 January 2018, which explores the relationship between health and graphic design. I follow the Wellcome Collection on Instagram, and came across this exhibition being advertised on my feed, and thought it is the perfect exhibition for what I want to look at during my degree. From what it says, its as if it was tailor made for me.
There are also a few events and workshops linked with this exhibition, including “Designing for Health”, which promises to look at how language and images are used to talk about health. It sounds as though there will be a range of talks over the various days, so am hoping to find out nearer the time what that involves. I may be able to go to some of these and squeeze in a viewing of Unrest, we shall see.
Jennifer Brea. 2017. Jennifer Brea. [ONLINE] Available at: http://www.jenniferbrea.com/. [Accessed 02 September 2017].
Netflix. (2017). GAGA: FIVE FOOT TWO | Teaser [HD] | Netflix. [Online Video]. 6 September 2017. Available from: https://www.youtube.com/watch?v=kxIua1MXhgo. [Accessed: 16 September 2017].
Nicole Douglas. 2017. Lady Gaga rushed to HOSPITAL with horror chronic illness | OK! Magazine. [ONLINE] Available at: http://www.ok.co.uk/celebrity-news/1179014/lady-gaga-hospital-in-severe-physical-pain-forcing-her-to-cancel-performance. [Accessed 17 September 2017].
TED Talks. 2017. Jennifer Brea: What happens when you have a disease doctors can’t diagnose | TED Talk. [ONLINE] Available at: https://www.ted.com/talks/jen_brea_what_happens_when_you_have_a_disease_doctors_can_t_diagnose. [Accessed 02 September 2017].
Can Graphic Design Save Your Life? | Wellcome Collection – Wellcome Trust. 2017. Can Graphic Design Save Your Life? | Wellcome Collection – Wellcome Trust. [ONLINE] Available at: https://wellcomecollection.org/graphicdesign. [Accessed 12 September 2017].
Designing for Health: A pop-up studio | Wellcome Collection – Wellcome Trust. 2017. Designing for Health: A pop-up studio | Wellcome Collection – Wellcome Trust. [ONLINE] Available at: https://wellcomecollection.org/events/designing-health-pop-studio. [Accessed 12 September 2017].
xoxo, Gaga (@ladygaga) • Instagram photos and videos . 2017. xoxo, Gaga (@ladygaga) • Instagram photos and videos . [ONLINE] Available at: https://www.instagram.com/ladygaga/. [Accessed 17 September 2017].